“Equity is not optional. Access is not privilege. Representation is survival.”
Across vast regions of the world — from Africa to Asia, from the Caribbean to the Pacific — entire populations have been excluded from the benefits of advanced cellular therapies and rare disease research. These communities form the Global Ethnic Majority — the people of colour who make up over 85% of the world’s population. Yet these are precisely the communities that remain invisible in donor registries, clinical trials, genomics research, and access to life-saving treatments.
“To connect, register, and empower the Global Ethnic Majority to access the future of medicine — advanced cellular therapies and rare disease care — with dignity, equity, and global collaboration.”
Every patient, regardless of ancestry or geography, has equitable access to treatment.
Every donor is seen, valued, and given opportunity to save lives.
Every researcher and doctor has access to diverse, global data to create better therapies.
Every government has committed partners — because this burden cannot rest on governments alone.
"Because health systems have forgotten too many… for far too long."
Across the world — and across the Commonwealth — millions of people living with rare diseases and other treatable health conditions have been left unseen, unsupported, and uncounted. They are not rare because they are few.They are rare because their stories have been ignored.Their ancestry has not been mapped.Their health data does not exist in the places where decisions are made.Their lives have fallen between the cracks of a system that was never built for them. Most global stem cell donor registries, rare disease research projects, and genomic studies overwhelmingly reflect only certain populations — leaving the majority of the world without a voice, without visibility, and without equal access to life-saving therapies.
CATRDR.COM was created for those who have been missing from every map — until now.
Rare diseases do not discriminate by ancestry, nation, or wealth.
But the systems that diagnose, treat, and save lives — absolutely do.
Across the Commonwealth and beyond, millions from Africa, Asia, the Caribbean, the Pacific,
Indigenous Nations, and other Global Majority communities are left behind —
structurally, systematically, and silently.
(Sirugo et al., Nature, 2019)
(World Marrow Donor Association, 2023)
These are not marketing slogans.
These are non-negotiable principles we live and breathe.
We will not accept systems that exclude, delay, or deny based on race, ethnicity, wealth, or geography.Health equity is not a gesture. It is our mandate.
We do not reduce human identity to tick boxes.We honour tribes, lineages, languages, islands, and nations erased from most medical ...
Your DNA, your health history, your story belongs to you.We defend your right to control, update, or remove your information at any time.Participation is power, but only when freely given.
